Cystic fibrosis is a genetic condition mostly affecting the lungs and digestive system.
This page contains links that you may find useful if your child has Cystic Fibrosis
What Is Cystic Fibrosis? This video shows an excellent summary of what cystic Fibrosis is, genetics and summarises treatment options (with thanks to the Cystic Fibrosis Trust).
New Diagnosis of Cystic FibrosisThis is a short video of a new parents perspective of their baby having a diagnosis of cystic Fibrosis (with thanks to the Cystic Fibrosis Trust).
The A-Z of Cystic Fibrosis This is an introduction to Cystic Fibrosis with the alphabet used to explain different aspects of life with cystic Fibrosis for school aged children (with thanks to the Cystic Fibrosis Trust).
Getting Nosey about CF with Oli and Nush A short animation film made for the Cystic Fibrosis Trust by Absolutely Cuckoo, to help children with Cystic Fibrosis understand their condition and to explain to other children what Cystic Fibrosis is.
Treatment/Medication
Introduction to EFLOW Rapid Nebuliser system This is a 2minute clip about the Eflow Rapid Nebuliser system(Acknowledgement to Pari for this video)
Pari- Inhalation with the Eflow Rapid nebuliserThis is a 15 minute video showing the Pari Eflow nebuliser. It is ideal if you are new to using the Eflow or to help as a help as a refresher. It describes what each part of the equipment is for and how to put it together. It shows how to clean and maintain the equipment and troubleshooting. (please note that in the video the bacterial filter and valve set is not shown, so is a good demonstration for DNASE or salbutamol, but if your child needs a nebulised antibiotic then they will need to use bacterial filters as well)(Acknowledgement to Pari for this video)
Philips Ineb This is a short clip explaining what the Ineb nebuliser is, made by Philips Respironic’s (Acknowledgement to Philips for this video)
Pulmozyme This is a 4 minute clip about Pulmozyme made by. It explains the role of Pulmozyme and how it helps with Cystic Fibrosis. (Pulmozyme is also sometimes referred to as DNASE) It also explains the role of nebulised antibiotics, hypertonic saline and salbutamol alongside pulmozyme.
How Creon Works This is a brief video clip explaining the role of Creon and how it works.
Physiotherapy techniques
How to use the Aerobika This 5 minute video will help advise and demonstrate how to use your physiotherapy device- Aerobika.
How the Aerobika works this video illustrates what is happening in the lungs while using the Aerobika* Oscillating PEP therapy system and why it is helpful
Pactster YouTube channel This is a link to the Pactster YouTube channel, and a link for an introduction to Pactster with Cystic Fibrosis. It includes short quick exercise videos that you can use to help take part in exercise at home, ranging from yoga to high intensity classes- all from the comfort of your own home.
Joe wicks PE class – The Body Coach TV. Joe Wicks (the body coach) has been recording daily workouts Mon-Friday which are all saved on his you tube channel to watch over again. Great workouts to use as part of your daily physiotherapy sessions.
COVID 19
Cystic Fibrosis & Coronavirus Professor Kevin Southern, paediatric consultant at the University of Liverpool, answers some of your questions about the impact of the coronavirus (COVID-19) for people with CF.
Cystic Fibrosis & Shielding Professor Kevin Southern, paediatric consultant at the University of Liverpool, answers some of your questions about shielding and COVID019 for people with CF. Also the link to the government website for shielding guidance.
General Information
Operation Ouch: Breathing 3minute clip explaining how we breathe, ideal to help children to understand.
Operation Ouch: Healthy Mucous 4 minute clip explaining what mucous is for children.
How a virtual choir of people with Cystic Fibrosis was made & managed infection control issues.This video is a behind the scenes of how the virtual CF choir was made. It shows how the infection control was managed and the issues people with CF face to avoid being in contact with each other.
Cystic Fibrosis Virtual Choir at European Cf Conference This is a video of the CF virtual Choir performing the song “take me to church” that was played at the opening ceremony at the European Cystic Fibrosis Conference, whist a dancer with CF performs a routine to the song.
