FAQs

What if I have a flare between hospital appointments?

• Maximise any medication that you may be taking so that you are taking the maximum dose allowed.
  
• Add in any rectal therapy as prescribed.
  
• Keep a food and symptom diary for a couple of days.
  

 If symptoms do not improve, contact the IBD helpline on 01843 225544 Ext 725 3132 or email ekhuft.IBD@nhs.net

Can I take anti-inflammatory medication such as Ibuprofen, voltarol

You should avoid where possible taking these types of anti-inflammatories as they can trigger a flare. You could try Paracetamol or codeine instead. However be aware that codeine can lead to constipation and should be taken cautiously

What do I do if I run out of medication?

When you attend your outpatient visit, it should be made clear if this is a one-off medication or whether it needs to be repeated. The information should noted on your clinic letter. If you are unsure then please ask your GP or contact the IBD nurse team. For most medications the first prescription will be given in clinic but repeat prescriptions should be obtained from your GP.

For immunosuppressant medications such as Azathioprine, 6-Mercaptopurine or Methotrexate the dose that you need to take can change in the first few months.  As the hospital teams are adjusting your medications, your repeat prescriptions will need to be provided by the hospital. Once your doses have been established your GP usually takes over the repeat prescriptions. However there may be certain medication that will always need to be prescribed by the hospital.

If you do unexpectedly run out of your medication then please contact either your GP or the IBD nurses, and we will try to help as best we can. Please give at least a week’s notice if a prescription is required.

Where can I get further information about my disease or any medication I may be taking?

There are many useful leaflets available that can be downloaded from the Crohn’s and Colitis UK website. These will focus on many aspects of your disease including managing symptoms, medication and support available.

https://www.crohnsandcolitis.org.uk/

https://www.crohnsandcolitis.org.uk/about-crohns-and-colitis/publications

How often do I need to have blood tests?

You need to have blood tests taken at least every 6 months when you are on these medications.

Immunosuppressants – Azathioprine, 6-Mercaptopurine, Methotrexate

When commencing this medication, blood tests will need to be undertaken every 2 weeks for the first 8 weeks, then every 3 months thereafter

Biologics          

Infliximab & Vedolizumab  - 2 weeks prior to the next infusion date

Adalimumab, Ustekinumab & Golimumab - every 3 months